There is joy and sadness in equal measure as we think of Sydney Swans footy player Gary Rohan and his wife Amie. The couple announced this week on Instagram that they are pregnant with twins. They also revealed that one of their babies has been diagnosed with anencephaly and is not expected to live long after birth.
While the couple expressed deep grief with this piece of news, they also demonstrated profound wisdom and love in the way they affirmed the inherent value of both babies, and their intention to carry both to term.
“We come to the decision that either way, BOTH our babies are beautiful, precious human beings, with the only thing being that sadly ones life is destined to be cut short,” they wrote.
They invited people who have been affected by anencephaly to share their experiences with them, to journey with them and help them answer the many questions they are grappling with.
“At the end of the day, we will always be parents to twins, our journey has just been written a little differently to others.”
It is a beautiful example of unconditional love, of parents creating lasting memories of their children that they will be able to cherish forever. Congratulations on your pregnancy, Gary and Amie, we are cheering you on in your beautiful example of parenting.
Here’s what Gary and Amie shared on Instagram
garyrohan16@amierohan_ and I are over the moon to share with you all that we have been blessed twice over 👶🏼👶🏼❤️
Sadly, one of our beautiful bubs has been diagnosed with anencephaly.
Anencephaly is a condition where part of the brain, skull and scalp never develops.
Our brain is very sensitive, so to live our brain must have cushion and protection. Since our brain tells our heart to beat, our lungs to breath, our legs to move and so on, these babies live from a few moments to a few hours after birth.
Babies born with anencephaly are not compatible with life.
Ames and I have known about this since our 11 week scan, and since knowing, we’ve been constantly discussing what we should do, how we should tell people and if we should tell people at all.
We come to the decision that either way, BOTH our babies are beautiful, precious human beings, with the only thing being that sadly ones life is destined to be cut short.
There are going to be some really difficult days ahead but also many happy ones, and we want to share each and every one of those moments with you all.
Talking about our situation with people has been our therapy, letting our emotions out has been the best thing for us personally.
We would love for anyone who has been affected by anencephaly themselves or know of others affected by anencephaly to please contact us.
Don’t be afraid to talk to us about it. That’s what we want, we want people to ask questions, we want to talk about it with others. We still need questions answered as much as everyone else.
And at the end of the day, we will always be parents to twins, our journey has just been written a little differently to others.
All our love
Gaz & Ames xx
Read Kristy’s story of how she found great joy in carrying her son Reuben to term, although he only lived 55 minutes outside the womb.